PROSTATE CANCER

ACTIVE SURVEILLANCE

WATCHFUL WAITING

 

WHEN A CANCER DIAGNOSIS IS WRONG

 

This is an extract from the Presentation by DR. CHRISTOPHER LOGOTHETIS, M.D. of M.D. Anderson Cancer Center, Houston, TX to TEX US TOO Prostate Cancer Support Group December 13, 1993. The full presentation can be read at Logothetis [this link is part of the Prostate Pointers site which is having some problems at present - if it is not accessible a Word.doc copy can be downloaded.

One of the problems with prostate cancer is definition. They label it as a cancer, and they force us all to behave in a way that introduces us to a cascade of events that sends us to very morbid therapy. It's sort of like once that cancer label is put on there we are obligated to behave in a certain way, and its driven by physician beliefs and patient beliefs and frequently they don't have anything to do with reality.

People who come from a totally different social background like the Swedes are very frustrated with us for the frequency with which we do prostatectomies. In fact, they are very angry. And urologists are probably the most embattled surgeons across the country in the United States. If you go overseas, and you are a urology surgeon in the U.S., there is a reputation that you carry with you that you are willing to operate on anybody the minute they sneeze. Now that's not necessarily true. Actually, the U.S. surgeons are driven by attempts to cure more people. So I think the motives are very correct in the overwhelming majority of them.

But one can't ignore the paradox that the earlier you treat, the larger number of patients you do operations on who would do well despite you. So proportionately the patients who benefit, that is those patients who are cured by your operation, start becoming a smaller and smaller fraction of the total. So there's the paradox with prostate cancer. The earlier you treat, frequently the therapy is more effective, but the cure rate from the operation actually gets reduced. This is because you're doing an operation on people more and more frequently who need it less and less.

So there are now these conflicting interests, and how are we going to solve that dilemma? All of you will tell me the exact same thing, and that is, "You've lost your mind! Once they've told me somebody has prostate cancer, I want it out of there, and that is the exact thing that we need to do right now."

And the answer is that, by studying patients with very advanced disease, we may find hints of what predicts that this cancer will spread, and this cancer will not. This will then permit us, when you come with prostate cancer, to tell you, "You have a prostate cancer that carries with it lethal potential and an operation is justified." That will give us the moral strength to move in early and even biopsy patients and screen patients earlier for their disease at age 50, knowing that we're not going to operate on people unnecessarily by doing that. And currently the only crude way we have of doing this is by indiscriminately operating on everybody. This is completely unacceptable; perhaps it is the least of the evils, but it's hard to justify. So that's why I believe treatment of late and advanced disease is really complementary to treatment of early disease. So my personal interest and my research interest is in very advanced disease. And I think it will also help patients with very early disease.

Q. Do the same numbers apply to radiation treatment?

A. Yes, the exact same figures apply to radiation. The dilemma with radiation is it's even worse than that. Because the radiation data goes like this. You don't solve one problem with radiation, you don't take the organ out that is responsible for the cancer. So you have two dilemmas with radiation. One is that you may eradicate the primary tumor, like prostatectomy does. But by not removing the organ that is responsible for the malignancy, you actually leave sort of the germ behind for the malignancy, so it can make a new one. That difference seems to come very late in the disease so that, if there are any differences between a prostatectomy and radiation, it would be very late somewhere between 7 and 10 years. Or, in those patients where there is a surgical risk, then radiation is clearly preferable. But, even if there's a difference, the difference lies in the ability to make a new cancer from the old organ.

Q. Are you saying what we use as the gold standard to find cancer of the prostate is not really accurate?

A. It's not accurate at all.

Q. Does this mean that a lot of people who are diagnosed as having cancer really don't?

A. Yes, if one accepts the diagnosis that the cancer is a disease that is potentially lethal, which is the one that all of you have with you. That's why you submit yourselves to prostatectomies and run around trying to do everything, which is appropriate. It's the wrong diagnosis because everybody doesn't have it.